Skip to main content
N
NeopedHub

Tag: rare-disease

2 links found

Filtering by tag:rare-disease
Sort by:
Type:
Pediatric DermatologyGuideline

DEBRA Pakistan — Epidermolysis Bullosa Patient Support Group (Lahore)

Pakistan's national member group of DEBRA International, the global charity for epidermolysis bullosa (EB). Based at Jinnah Hospital, Lahore. Provides family support, patient community and referral to DEBRA International's free clinical practice guidelines (neonatal EB care, wound management, pain, palliative care) and parent guides. Useful for referring newly diagnosed EB families and for clinicians seeking local EB contacts. Contact: debrapakistan@gmail.com, +92 333 9997211.

Unverified
No ratings yet
Visit
Genetics, Syndromes & Rare DiseasesToolNov 2026

GARD — Genetic and Rare Diseases (NIH)

NIH's free resource on rare diseases — easy-to-understand disease summaries with information specialist support in English and Spanish.

Verified
4.0 (1)
1
Visit